Feb 9, 2021There's always light at the end of every tunnelMy name is Sumaya Gasnola. I am 62 years old. Just after my 50th birthday I started getting very bad knee pain and swelling in my knees...
Feb 9, 2021Rare is strength. Rare rarely gives up and rarely failsHello, I am a Rare Woman chosen by the Lord to be Nabeelah’s mom. I am a teacher by profession and in my classroom I always loved the boy...
Feb 9, 2021We can still live our best lives with Rare Diseases SA's helpMy name is Matthew May, I am 7 years old and going to Grade 2 (in spite of having mum and dad home school me through this pandemic.) I...
Feb 9, 2021We live with uncertainty daily, coloured with hope for a miracle. Hi There This is our story… One November morning in 2019, my daughter woke up, screaming and crying that she has stomach pain, she is...
Feb 9, 2021A walking miracle, living a beautiful life.Hello, my name is Kerry Walsh. I was born on the 22/10/1997, I was born in a set of fraternal twins. I have SMA (spinal muscular atrophy)...